No date is more apt for Rare Disease Awareness Day than Feb. 29, which only happens every four years.
Monday, health advocates gathered in Sacramento as part of the global event.
In the U.S., a disease is considered rare if it affects fewer than 200,000 people.
The National Organization for Rare Disorders banded together Monday with state legislators and local families to talk about what some are faced with in the community.
More information about Rare Disease Awareness Day can be found on its website.